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Open source research

  

We need to employ “open notebook science” and move promising technologies from the lab to the patient and make treatments for currently untreatable eye disease available to patients while reducing required time, cost and effort.

To achieve this goal …

…we need to learn from open notebook science projects in other fields where it is practiced.

We need to utilize existing communication technologies to provide a platform on which researchers can make their entire primary record of a research project available online as it is recorded. This involves placing the laboratory notebook of the researcher online along with all raw and processed data, and any associated material, as it is generated. We need to foster initial examples of open notebook science around specific projects on which multiple researchers are working, to demonstrate the benefits of open collaboration by reducing time, cost and effort required to complete projects

We need to encourage adoption of open collaboration with incentives in funding agreements

We need to look outside of the traditional division of medicine by body part or system and seek opportunities to leverage resources with researchers outside of the traditional vision research community.

We need to support and advise patient groups on building useful patient registries and virtual and physical cell banks. We also need to educate them about the importance of coordinated research efforts and how this can reduce timelines and cost.

We need to build a researcher and facility registry, including competencies and assets, and look for opportunities to connect projects for collaboration consideration.

We need to develop structures that allow sharing of success and risk.

We need to actively publicize successes and provide a forum for ideas that have not yet worked.

We can utilize existing technologies to facilitate this open collaboration.

Perhaps an audacious idea, but in time it will happen.

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